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Who cares?


27 August 2009


A recent decision by the Health Service Ombudsman will pile pressure onto NHS Trusts, increase scrutiny of decision making on funding continuing healthcare and encourage more complaints and claims.

The Government recently published the Green Paper, ‘Shaping the Future of Care Together’, launching a ‘Big Care debate’ on the future of adult social care, and especially the way in which this should be funded. Our recent bulletin, ‘A Green Paper and grey expectations - is the 'Big Care Debate' big enough?’ asked if this debate goes far enough and whether it tackles the underlying fundamental problem; healthcare is free of charge while social care is means-tested. It can therefore be very hard to determine in practice where the boundary is drawn and there could be no better example of this than the case of Judith Roe.

Judith Roe suffered from Alzheimer’s and died at age 74 in October 2008. She had been assessed as ineligible for NHS funded continuing healthcare (CHC) as the Primary Care Trust (PCT) deemed her care needs were social rather than healthcare. Mrs Roe therefore had to sell the family home to fund the £600 per week nursing home fees. Her family’s complaint has now been upheld by the Health Service Ombudsman, who found that she should have been granted CHC, and ordered the trust to repay more than £100,000. Strictly speaking, the Ombudsman only has power to recommend a payment of compensation, but her recommendations carry enough weight that 99% of them are complied with. As an indicator of the trend, the Ombudsman’s staff has increased from around 250 to nearly 400 over the last year, reflecting an increased workload under the reformed health and social care complaints system, and we can expect her profile and role to grow.

In other cases, Alzheimer’s and Parkinson’s sufferers, or their families, have recovered hundreds of thousands of pounds. Collectively, the implications for PCT budgets would be enormous if all patients with those conditions are to have all their care fully funded by the NHS.

Despite the Government’s guidelines on CHC - the National Framework and Decision Support Tool, currently being revised and in force from October 2009 - there is still a lot of local discretion, in other words a ‘postcode lottery’. The facts of individual cases are diverse, and local priority setting is encouraged in other policy contexts, not least the Next Stage Review. Each PCT, of course, has its own limited budget and a statutory duty to balance the books. Nonetheless, people are more and more ready to challenge decisions they do not like.

Emotive as the subject matter is, the tone of the press coverage and commentary is hardly conducive to a calm and balanced debate over priority setting and allocation of finite resources. Whilst one newspaper criticised PCTs for “shameful flouting of the rules”, a correspondent wrote, “unlawful, unaccountable and unnecessary – job description for the average ‘health administrator’… a cosy club for the socialist unemployables”. Another predicted that, “in a few years time they will complain that too much of their budget is taken up paying legal fees and compensation to those they have tried to defraud of their rightful dues…”. Indeed, one firm of solicitors quoted in the press coverage is said to already have 750 more cases in the pipeline.

The new NHS Constitution starts with the promise that the NHS is a ‘comprehensive service’, but the Courts have usually recognised that this can only be an aspiration, and is by definition unachievable within a finite budget. The Ombudsman has not yet published a detailed report on her decision and reasoning in this case, but the press coverage will only encourage complaints and claims. The language of 'entitlement' in the NHS Constitution and Department of Health policy will inflate expectations which simply cannot always be met within limited resources.

On its face, this decision seems to be good news for local authorities, moving the burden of funding onto the NHS budget, but they should also be wary. While the PCTs are obviously first in the firing line, social care providers could also feel the heat from increased scrutiny on access and funding decisions, for example if disgruntled service users and their families feel that they do not adequately challenge PCT decisions not to fund.

While the distinction between (costly) social care and (free) healthcare remains so important, but sometimes obscure and apparently arbitrary, this incendiary combination will only work to the advantage of those making a living from the disputes, complaints and claims that this will cause.

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Ben Troke
0115 976 6263
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Sarah Erwin-Jones
0115 976 6136
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The content of this bulletin is provided for the purposes of general interest and information. It contains only brief summaries of aspects of the subject matter and does not provide comprehensive statements of the law. It does not constitute legal advice and does not provide a substitute for it.

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